header-btn

Current News

Tag: monthly

Spotlight Story Program: Meet Caitlyn Fulton

Meet Caitlyn Fulton Growing up in Scotland with cerebral palsy, Caitlyn Fulton has challenged herself to not only become her biggest cheerleader for her daily life, but to take her hobbies and bring them into the forefront of the work and activism she does. Having studied music in university and being a model, Caitlyn is constantly […]

Read More

When You’ve Got Health Hindsight: My 10-Year Anniversary with Chronic Illness

December 30, 2018 Well hello again, long time, no blog! It has clearly been a while since my last founder’s blog, but that’s just because InvisiYouth Charity has been keeping me so damn busy. (*and if you’ve been keeping up with InvisiYouth, you’ve gotten to know the reason for that is our new video podcast […]

Read More

Spotlight Story Program: Rachel Mayo's Story

Meet Rachel Mayo As a university freshman, Rachel was diagnosed with Type 1 Diabetes, and it changed her way of way. But Rachel decided to take her new diagnosis and not just better her life, but motivate others with T1D to do the same. And she’s been doing that across the United States ever since. Plus…we’re […]

Read More

A Season of Giving, A Time of Gratitude for All the Often Unsung Heroes in Our Spoonie Lives

December 20, 2017  As the holiday season rolls upon us, we are all bombarded with some holiday spirit in some shape or form. Sometimes it may not feel that jolly or cheerful, when that serious case of F.O.M.O. kicks in because your health or limitations may prevent you from being the #1 social member of […]

Read More

The Invisible Illness Chronicles: It Can Be Exhausting to Feel Like You Need To Act Healthy When You Don’t Feel Healthy

October 17th 2017 I constantly get questions about the hacks to living with chronic illness (I mean, that’s what InvisiYouth Charity’s mission in life is all about). Those questions double when it comes to life with an invisible illness. It only seemed appropriate that with part of my monthly blog I would wrote some blogs […]

Read More

Spotlight Story Program: Shira's Story

Meet Shira Strongin There is no joke around the statement that 18 year old Shira Strongin is an OG Sick Chick…in fact, she took her personal experiences growing up with chronic illnesses and built an entire international community surrounding the exact name, The Sick Chicks, all about empowering young women living with illness and disability. […]

Read More

Why Mental Health is Important to Our Brand: Health=Health

with Guest Contributor Brittany Foster June 27, 2017 Every so often, I get told, “It must be so hard to have InvisiYouth focus on physical and mental health. They are completely different.” But that couldn’t be further from the truth! My response…health is health, regardless of it focusing on the mind, or the body. In […]

Read More

“That Looks So Cool, How Did You Come Up With That?” The Fashion Hacks and Tips For Those With Illness

May 30, 2017 Way before I got injured and before I ran my first fundraiser, my dream job was one of two options: a professional tennis player, or a fashion magazine editor. I loved the ability to describe myself in clothes, to layer and accentuate how I wanted to look and feel in a moment. […]

Read More

What's In My Bag: The "Boss Lady" Spoonie Edition

March 31, 2017 It’s often so hard to travel on a daily basis as a spoonie, let alone make sure that you have everything you need in order to adapt and function to your health struggles each and every day…Even harder, not to feel the need to carry a massive duffle bag everywhere you go! For […]

Read More

New Year, Same Health and Same Work: Finding the Always-Changing Balance of a Work Life and Illness Life

February 8, 2017 As everyone seems to be trying to stay true to their New Year Resolutions, some were daring and used a pen, others are like me and preferred to make sure their new hopes and goals could change with the ease of an eraser. Recently, I’ve been hearing from a lot of you wanting […]

Read More

Tags

#baltimoreblogger ability ableism accommodations accurate casting acting activism adapt adaptive adaptive accessories adaptive sports advertising advice advocacy allies allyship ambidextrous america american AMPS anniversary anxiety apple podcast archive art student ASOS asthma athlete australia australian blogger autoimmune autoimmune conditions award show awareness BBC beauty beauty brand beijing bereavement beyond type 1 BHA bladder pain syndrome blind blindness blog blogger blogging boccia boss boss girl boss lady bracelets brighton British british blogger British Heart Association Britsh bronchiolitis obliterans brunch brunch meeting business owner cafe meeting california canada cancer cane cardiac cardiology cardiomypathy casting celebrity ambassador celebrity dance competition cerebral palsy CF charitable sponsor charity charity event charity events charity meet up charity store CHD cheerfully live Chiari Chiari Malformation chicago child CHOP christmas chronic fatigue syndrome chronic illness chronic illness activism chronic illness advice chronic illness awareness chronic illness blogger chronic illness group chronic illness support chronic illnessc Chronic Regional Pain Syndrome chronic youth australia chrons chrons disease claire wineland clothing brand cochlear implants coffee coinfections college college students comorbidities complex regional pain syndrome confidence congential heart defect coronation street costochondritis COVID covid19 pandemic advice Coxsackie virus CP CP Teens crohns crohns disease CRPS Cures Act curved spine custom tees cystic fibrosis dancing dancing with the stars dark horse deaf deaf community deaf culture december december give back challenge Degrassi design student diabetes diagnosis diagnosis journey disability disability acting disability activism disability actors disability advice disability awarenes disability awareness disability model disability rights disability sports disability support disability tips disability tops disablity discount documentary donate donate life donate life america donate now donate today donating donation donations donor dorney lake double lung transplant DWTS east 15 acting school EDS education EFDS Ehlers Danlos Syndrome empower empowerment endometriosis England entreprenuer epilepsy Epstein Barr virus ESPN ESPN correspondent Essex ethical clothes ethical consumerism etsy etsy shop event events everything everything facebook family fashion fatigue feature female director female entreprenuers female founder feminist fibromyalgia film flare up FND founder founder's blog fowler's syndrome friends and family functional neurological disorder functional seizures funding fundraise fundraiser fundraiser event fundraising gbl all star gbl ambassador gbls genetic disorder genz girl boss girl boss blogger give back give back challenge give back grid givebackgrid giving tuesday global brand leaders global brand leaders program global charity gluten goal setting goals gp graphic designer hangout hangouts happiness hard of hearing hashimoto's disease health health advocacy healthcare healthcare advocacy healthcare advocate hearing aids hearing loss heath advocacy heathcare heds hidden disability high school hip replacement HMSA hoboken holidays hoodies hospital hospital advice hospitals how to hypermobility hypertension hypothyroidism ice hockey IgA immunodeficiency iheart radio ileocaecal crohns disease Illinois illness im 4 love immune system inclusive inclusive casting influencer instagram instagram live international interstitial cystitis invisibile illness invisible disability invisible illnes invisible illness invisible illness advice invisible illness awareness invisievents invisiyouth invisiyouth charity invisiyouth charity shop invisiyouth chat sessions invisiyouth global brand leaders itv IYC Brand Leader jdrf la las vegas leadership leadership program leukemia life advice life hacks lifestyle lifestyle hacks limb difference lip gloss lipstick liver disease liver failure liver transplant london los angeles love love your scar lung disease lung transplant lupus lupus awareness lupus awareness month lupus sle lyme lyme disease lyme disease uk makeup brand makeup line manchester marathon marfan marfan syndrome marketing maryland MCAS medical equipment meet ups meetups mental health mental health activism mental health awareness mental health blogger Midnight Sun mighty well millennial advice millennials miniseries model monthly monthly blog motivation motivational speaker motivator movie multi-city narcolepsy national donate life neurological neurological condition new jersey new year new york new york city new zealand news news archive news article nhs nice genes nomination nominee nonprofit nyc olympics operation organ donation organ donor organ transplant organization OUAS pacemaker pain pain management parliament partnership pediatric pediatrics perscriptions philanthropgy philanthrophic philanthrophy philanthropic philanthropy physical disability physical health physical therapy physio physiotherapy podcast podcast advice podcast hacks podcast tips podcasting post traumatic stress disorder postural orthostatic tachycardia syndrome POTS profound deafness programming promotion PTSD pulmonary pulmonary hypertension purse radio rare disease recycled clothes Reflex Sympathetic Dystrophy relationship relationship advice relay for life respiratory respiratory physiotherapy respiratory syncytial virus restrictive lung disease retinitis pigmentosa rider university role model RSD RSV Scitmitar Syndrome scoliosis scoliosis surgery scotland scottish scrunchies seizures selfcare setting goals severe gluten intolerance shop sick chick singing social media spinal cord injury sponsor sponsors sponsorship spoonie spoonie blogger spoonie hacks spoonie life sports spotify spotlight spotlight story spotlight story program story storytelling streetwear sts suffering the silence superhero series superhero tri support system supporters swimmer Switched at Birth t1d tachycardia Takayasu's Disease Takayasu’s tbi tee spoonies teen teen advice teens television The Fault in Our Stars The Fosters The Mix theatre therapy tips tourettes tourettes syndrome trampoline transplant transplant story transplant survivor transplant warrior Transverse Myelitis trauma traumatic brain injury travel triathlon triplec tv twitter type 1 diabetes UK umbilical hernia undiagnosed uni student United Kingdom united states university usa usher syndrome usher syndrome type 2 vascular Victoria Arlen Victoria's Victory Foundation video video podcast virtual program virtual programs virtual volunteers visual impairment volunteer volunteering volunteerings wales warrior washington DC ways to donate WEGO Health wego health awards wheelchair wheelchair user Wonder world vision australia writer xray ya yorkshire young adult young adults youth youth activism YouTube zebedee talent