Global Brand Leaders Program
Advocate. Fundraise. Empower.
These are the pillars of InvisiYouth Charity's Global Brand Leaders Program. Teens and young adults from around the world are selected to work with InvisiYouth for activism and fundraising. These dedicated and passionate young adults have achieved some incredible accomplishments in their lives, all the while living with various chronic illnesses and disabilities. Our Brand Leaders are motivated and fun-loving individuals who contribute to their communities in the health sector and beyond, and will work with InvisiYouth to mutually promote empowerment and raise funds for all young adults living with all illnesses or disabilities. And they get access to all of our merch and programs before anyone else! The objective: further InvisiYouth’s mission into their neighborhoods, to broaden awareness and access to supportive InvisiYouth events/programs that can be provided for our growing international young adult network.
Do you, or someone you know, want to become an InvisiYouth Brand Leader and make a difference? We want to hear from you, so Contact Us!
Meet all of the 2018-2019 InvisiYouth Global Brand Leaders:
Chloe Tear, 19, England
"I have mild Cerebral Palsy as well as being registered as partially sighted. I started writing ‘Life as a Cerebral Palsy student’ at 15 and writing allows me to express myself and raise honest awareness about the daily aspects of my disabilities. We all have a unique story, but together we can strive towards acceptance and understanding, even if this is just a greater understanding of ourselves. Aside from writing, I am currently studying Psychology & Child Development at university and the Assistant Coordinator for CP Teens UK. CP Teens is a charity who provides help, hope, inspiration and friendship to young people with Cerebral Palsy or a similar physical disability, and is a role that I thoroughly enjoy. I love meeting up with friends for coffee and photography. “Go turn those obstacles into opportunities, don’t look back and never ever put a limit on what you can achieve.""
Life as a Cerebral Palsy student: www.cpstudentblog.blogspot.co.uk
Ashley Murphy, 18, Canada
Ashley Rose Murphy was born to an addict mother, contracting HIV from her mother at birth. For the first 10 years of her life her life was filled with neglect, foster care, three months in a coma and sickness. In addition to HIV Ashley has mild cerebral palsy, learning disabilities, anxiety and osteoporosis. Since the age of ten she has been speaking openly about growing up with HIV. She’s an Ambassador for Elizabeth Glaser Pediatric AIDS Foundation and WE Movement. Now 18 years old and studying at a university, Ashley is a leading voice for the young adults population, using her story to motivate other young people to reach their potential in the face of adversity, and to continuously break down stigmas for those living with HIV and other chronic illnesses.
TEDxTalk: YouTube video
ME to WE: Ashley's WE Ambassador Profile
Sophie Ward, 24, England
My name is Sophie from the North of England. In April of 2017, I was diagnosed with Lyme Disease and co-infections. My health over the past decade has declined dramatically. I went from swimming for Great Britain to using a wheelchair on outings out of the home. My illness had driven me to be passionate about helping others who also suffer with chronic illness find worth, purpose and their voices. We are often silenced by health professionals, labelled crazy and feel a drain on our loved ones. I run my blog to offer comfort and motivation to those who feel alone. I do a lot of work with my local MPs (member of Parliament) to push for change and acceptance for my disease and I am one of the admin for the Lyme Disease UK discussion group. I have written two recipes books filled with allergy-free recipes because of the amount of intolerances I began suffering with meant my diet has had to change dramatically. I try to switch the light on in the darkness and help others face the sun too. I am passionate about finding our voices. Encouraging hobbies and self-love in a challenging situation is deeply important to me.
Website (blog): www.sophantastic.org/
Emma Franklin, 25, England
"I'm currently fighting Chronic Lyme Disease, I've had it for 15 years and have been diagnosed/treated for the last two years. I'm much better than I was, but I still have a long way to go! I used to work in the fashion industry but now Lyme has taken me down a different path so I'm studying nutritional therapy; once I'm qualified I will be able to open up my own affordable clinics across the UK to treat people with Lyme and other chronic illnesses. I write a blog about my experiences with chronic illness and use social media, a presence online and the media to raise awareness. I'm hoping to make a change out there. I'm excited about being an InvisiYouth brand leader because they help people across the world who are battling chronic illness, which is what I want to do. We make the perfect team!"
Facebook Page: Blonde Voyage
Madi Vanstone, 16, Canada
My name is Madi and I live on a small farm just north of Toronto in Ontario, Canada. I was diagnosed with Cystic Fibrosis at 8 years old and have struggled with this disease spending nearly a month every year in hospital treating lung infections. I have been working towards a cure since I was a year old, when I participated in my first Great Strides Walk to benefit CFFF. I have also done a number of speaking events sharing my story and raising awareness of Cystic Fibrosis. When I was 12 yrs old, I was in desperate need of a new, yet VERY expensive drug that would correct the defective gene in my ailing body. I decided that I would do all I could to get government coverage of the drug for myself and others who like me would have a hugely improved quality of life. After nearly a year of a very public and well covered battle with our provincial government, the drug was granted coverage. Due to all of the time I missed at school I sadly fell behind my classmates, and we decided that e-learning would be a better fit for me, so I do all my schooling from home. I love animals and we have 3 horses, 2 cats and 2 dogs, all rescues. I have worked with the Rare Disease Group, We Are More, I continue to work with the Canadian Cystic Fibrosis Foundation and I am looking forward to be working with InvisiYouth! I am hoping that as a Brand Leader I will be able to help and inspire others to live their best lives and that despite our individual challenges we can create a beautiful life for ourselves and others.
Facebook: Madi Vanstone
Facebook Group: Madi's Miracles
Shona Cobb, 20, England
My name is Shona Cobb and I am a writer, blogger and disability activist from England! I have a genetic condition called Marfan Syndrome and I'm a powerchair user. Over the past few years, I've become empowered by my disability and chronic illness and have used it to try and bring about change in the United Kingdom. I spend my time raising awareness of Marfan, writing about ableism and accessibility and occasionally popping up in the media talking about issues that affect disabled and chronically ill people. It's my passion and so it's what I spend most of my day doing! I'm really excited to be a Brand Leader for InvisiYouth Charity, an extension of the work I love doing, to be the voice and guide that I would have benefited from in my early teen years as my health deteriorated.
Aria Gaudet, 19, Canada
Hello! I'm Arianne, 19 years old, and from the land of maple syrup, eh, of Canada! Maple syrup has anti-inflammatory properties which comes in handy for someone who has chronic pain. When I had hip surgery, I had no idea it would lead to chronic neuropathic pain. Now, my chronic pain has led me to different passions I have and people who I otherwise wouldn't have met. InvisiYouth Charity has a vision for empowering young patients to become the person they're meant to be, despite the health challenges they're dealing with. To be able to share these tools and programs to help empower each other, is the most exciting part of this journey. Can't wait to connect!